Just shows you this young lady was mis-diagnosed with MS and now it’s too late for her; it is Lyme Disease. Lyme Disease Sufferer Desperately Raises Money For Treatment Abroad Following Deadly Tick Bite | HuffPost UK Life
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How sad. I wonder how many people are misdiagnosed like that.
Sue
As you know, I was misdiagnosed with PPMS, for 8 years, before HSP was mentioned. Before that I was suspected of having HSP for 4 years.
I only recently requested genetic testing for HSP. It can bring a false negative, as there are over 60 genes responsible for it and they can’t test for all of them.
Lyme’s desease is a nasty one too!
Pollx
When I was little I did get a tick bite behind my ear. Luckily it was successfully removed whole.
They are difficult to remove as the head often stays put.
I was tested for Lyme’s early on.
Pollx
This reminds me of another case of Lyme Disease wrongly diagnosed as MS, it was reported in the Daily Mail…
Ben
Lymes is way too misunderstood. If its chronic you wont get positive tests because the bacteria hide in cysts especially behind joints like knees etc. My friend in the states has had it 20 years and is still ongoing with trying to get rid of it.
I have a co infection of it they believe as my tests although negative in the UK, in the states the doctor would have actually said i had met lymes and treated accordingly as I had 3 tests which came back showing i had met lymes at some point. However, in the UK i would have simply been told negative. As I paid for my tests i had the results to see for myself. In the UK they are way behind about Lymes believe me.
Hi Sue in the states I believe a lot are. I belong to quite a few good Lyme forums (as i have had some results pointing to meeting of Lymes), and its a lot worse then people think. In the UK there is now an epidemic of Lymes disease which is kind of being kept quiet.
I was tested by the best there is Igenex in the states, and i have the test results which showed without a doubt i have met Lymes and am probably carrying a co infection of it. We have tried to get rid of it, but when its attacked with antibiotics it turns me into a spin and makes me feel way to ill (its called HERXING). So now i leave it alone if its there it can sit quietly lol.
But I have been diagnosed with MS simply because my lesions were the right shape, and i did have Obands in my CSF which is not as common in lymes. Although even in lymes you can have o bands and lesions on MRI, so it is no wonder some people get confused with the two and are misdiagnosed.
I think also people should take into account whether they could have been bitten. I was in Brazil and USA which has a high rate of lymes and some of the areas i visited were woody etc with deer about, also i am/was a keen fisherwomen, and sat for hours on our lakes close to home where deer, and sheep roamed too so was at risk of being bitten. The sad thing too is you can be bitten and carry a tick and never even know it.
I think if anyone has dogs and they walk them in woods or long grassy areas, they must use a really good parasite protection programme, so if any ticks attach themselves to the dog it wont stay on and will die, therefore wont be brought into the house and the next victim could be a human.
Lymes is so underrated in this country it is quite scary really.
This is interesting about it.
http://www.emaxhealth.com/1275/multiple-sclerosis-and-lyme-disease