Hello all,
I am looking for some advice on medication. I am recently diagnosed with relapsing MS with a recent relapse which started this journey to diagnosis, although MRI shows that I have been living with MS for 5/6 years. I am lucky, I have only a slight loss of sensation in one hand and no other lingering symptoms. I feel overwhelmed with having to choose which DMT to pick as I qualify for all. I’ve been reading up on them but it feels like a lottery. I am 34 y woman with 2 children, so my family is complete which makes decisions easier. My initial thoughts are to go with the Ocrevus transfusion. I guess I was shocked with how much monitoring comes with it, and all of them. Has anyone have any advice about DMT’s or is on the transfusion? Thanks you.
Hello
Have a look at https://www.mstrust.org.uk/about-ms/ms-treatments/ms-decisions-aid This will give you information on all the available DMDs.
But it’s a difficult time to be starting on an infusion based drug due to Covid. I think you’ll need to speak to your MS nurse and/or neurologist to see what options you have.
Remember, all drugs have side effects, so it’s important to look at the risks, balance the possible side effects against the probable relapse reduction rate.
Sue
Hi, do ensure you get all the side effects explained fully. Ask people here about any particular meds…there will be pros and cons.
You may get more replies if you post this on the Everyday Living board.
Boudsx
Having recently been told I was eligible for all treatments, I was also immediately informed that two of the three infusions have been temporarily withdrawn due to the effect on the immune system. The only one left is Tysabri as it works differently and therefore does not leave you as a sitting duck for Covid. Obviously the JCV is a concern then, but getting tested for it doesn’t commit you to starting the treatment. It’s also the least convenient, but definitely worth considering if it’s on offer.
Best of luck,
Chris
Hi there,
My journey with DMD s started off with Rebif which I injected 3 times a week. Then I moved on to Tecfidera a twice daily tablet - o joy - no more injections and minimal side effects - initially a bit of nausea which settled with some food. Now I’m left with lovely Tecfidera flushing on my face - which I cope with ok. I initially had 3 or 6 monthly blood checks but now I’m established it is every year.
Hope you make the decision which is right for you
Min xx
Ask your GP about ZOMORPH & MORPHINE SULFATE ORAL USE AND PREGABLIN MIX. these help me and i hope that they might help you.
Thank you for you posts. It’s given me a lot of information. With everything going on I think there is a backlog but want to start as soon as possible.