Hi all, been a while since I’ve been on here. The past 4 weeks I’ve been having problems with painful, jelly legs and a strange jittery feeling inside my body, like I’m shaking in the inside. 3 visits to my GP and tonight he’s decided to refer me back to neuro, very anxious about this after the way i was treated last time, and also GP has started me on amitriptyline tabs for the pain. Can anyone say if they’ve tried this and had a good result??? Bit worried about using them as they are anti depressants!!!
Sorry, just joined site. What happened last time with neuro. I’m interested coz I had a horrid experience recently.
Hi well 5 months previous to my last visit I was told the were 95% sure it was MS and would see me again in 6 month, 5 week before my next appointment my GP decided he wanted me to go earlier. On arrival the neuro seemed pretty peed off that I was there early and turned round and said he didn’t think it was MS and didn’t want to see me again unless I loss the sight in my eye or the use of either arms or legs and then discharged me??? What happened with you?
I was diagnosed, had three days IV steroids. Nothing improved. My ms nurse was worried so liaised with neuro who told her my symptoms were “inconsistent” with what she’d observed and demanded I go in and see her. She wouldn’t listen, told me it was all down to anxiety, even though my symptoms have been present from day one. Basically told me to belt up and get on with my life. At one point I asked about my temperature issues and she barked at me " you’re 41, it’s your hormones". I have never felt so humiliated or belittled. If I hadn’t been diagnosed, I would think I’m imagining it all.
Hi Whats going on
Your story sounds familiar, my neuro has said exactly the same thing, he doesnt want to see me unless i get blurred vision in 1 eye or a weakness in a limb!
Just out of interest, where are you based!?!
It would be funny if it was the same one!
Mrs H, our stories sound too alike, I too was told its anxiety, but I feel fine in that area!!! I know it’s difficult to diagnose but it’s even more difficult to live with all these scary symptomns and not know why??? And anon I’m in the east midlands
I know!! The neuro barked, that I was only anxious because of the label ms and if she had just diagnosed me with “neurological symptoms”, I would not be exhibiting the symptoms. I tried to tell her that the symptoms came first, by like 6 weeks and it is the symptoms that I am anxious about and that it wouldn’t matter what the “label” is, but she was having none if it. She had already made her mind up about patient number, whatever number I am, like an abstract being, not an individual. I was gutted and sobbed my heart out for ages afterwards.
Neuropathic pain and sensory symptoms can be helped by low doses of anti-depressants. A lot of MSers are on them and amitriptyline is one of the most common. It can make people very drowsy so it’s normally best taken in the evening - so you get the added benefit of a very good night’s sleep!
I hope they work well for you.
Karen x