I've been on Avonex 11 years, it seems to suit me, flu like side effects nothing like they were when first starting. All was well until 15 months ago when I got an alopecia areata which is spreading to the point that a wig will probably be needed within a year!!!! I noticed I used to shed a lot of hair years ago but no bald patches. I'm 57 and am wondering if the Avonex is responsible or my hormones. My Neurologist believes I should take a break and probably stop Avonex as he doesn't think I need it, 11 years without a relapse, he said Avonex reduces the number of relapses, not, stop them altogether. I had MS 15 years without knowing then went to bed fine but woke up with my left size paralysed, that's when they diagnosed me. So I've had MS 26 years, still on my feet, left arm a bit useless but I manage. I'm scared of getting another massive relapse but am also wondering about the long term side effects of Avonex.
Grateful for any thoughts or knowledge of this.