I am new to this forum and wanted to share my story. I’m feeling very lost and anxious at present as I have a range of really discomforting symptoms and I’m yet to get any answers.
I have had CFS for a number of years and I am used to the fatigue, pains and sensations that come with this, however, in December I began to feel unwell with a lot of different sensations. It began with nausea, pains in my leg muscles, an increase in anxiety, behavioural changes, migraines, the sensation of raindrops on my skin and has progressed to prickling, pin prick pains, burning sensations and tingling, pins and needles in my limbs.
I have contacted my GP and he ran a neuropathy panel that showed nothing other than elevated b12 from supplements. I asked for a referral for an MRI as I’m due to be a father this year and I’m very anxious to get to the bottom of what’s going on as it seems to be progressing and getting worse. I had the brain MRI last week and the results came back to say it was normal. I was sent a disc with my scans and had a look out of curiosity and noticed some white looking spots so asked for a second opinion. This came back from a neuroradiologist and she said that there were no indications of MS and the brain MRI was normal.
despite being pleased at the MRI Being okay, I still find it very hard to believe as there looks to be some abnormalities and my symptoms all line up with MS and are getting worse. I had numbness in my hand last week and have arranged another GP appointment for next week in the hope that I can get a referral to a neurologist.
the clear scan, I now realise, does not rule out MS as I should have got one of my spine as well. One interesting note is that I was taking a b6 supplement for a long time and upon researching, long term intake can cause some of the sensations I’m having, although they have continued to get worse since I stopped taking it.
my symptoms are all over the body and are transient, the prickling comes and goes quickly and will dot from sole of foot to palm of hands, fingers and it’s the same with the tingling and pains. Does this sound like a similar pattern for MS and can anyone relate? I’m very down at the moment as I’m just getting worse and have no answers. I feel it’s a matter of time till things escalate and I get a definitive answer.
any advice is greatly appreciated