Every area of my life feels like it is falling down the pan. Had LP yesterday and still off sick from my job ( which I worked ten years to achieve). I don’t know what to do for the best as it is a stressful role I am in with no help!! My son has told me he is joining the military in Spain … I fear for him and him me …but he is still going! There is so much more going on everywhere I look…I have spent nearly two months wondering what to do. I dreamt last night that I had a menacing man next to me in bed - he represented death …I couldn’t see him but I knew he was there . I was paralysed with fear and wanted to scream but couldn’t . ( I have since read nightmares can be a side affect of the amitryptiline I have started taking- horrible) Feel I have no escape from all aspects of my life at the moment and no solutions … I am normally very positive and finding it difficult to find grains of hope at the moment.
Hi Anon xxx I really feel for you and I like lot’s of people on here can relate to what you have said and how you feel x
I’m where you are at the moment - someties life can seem overwhelming - I think when you are not well and fear for the future - everythig can seem like a mountain to climb! I’m not going to patronise you by saying it’ll all work out and all be fine in the end - because we simply don’t know anything for sure do we!
But worrying ourselves sick is not going to help - be kind to yourself - recognise that we can’t be positive all of the time and keep using this forum to express how you feel knowing you have understanding & support - that’s what I try to do xxxxxjenxxxxx
Thanks Jen, I just feel trapped in my life, body and situation. My son …I can’t do anything about …just pray he will be safe. My health is just an ongoing limbo!!! Can you or anyone tell me - if I have had symptoms for 5 months that have always continued in some shape or form throughout is this classed as one attack?? Or does it sound like progressive MS …I am so confused and upset by it all!! I really appreciate your kind words Jen and yes this forum is a help. X
Thanks Jen, I just feel trapped in my life, body and situation. My son …I can’t do anything about …just pray he will be safe. My health is just an ongoing limbo!!! Can you or anyone tell me - if I have had symptoms for 5 months that have always continued in some shape or form throughout is this classed as one attack?? Or does it sound like progressive MS …I am so confused and upset by it all!! I really appreciate your kind words Jen and yes this forum is a help. X
Limbo is a very scary place, but I’m afraid there is no option but to stick it out because at least that will (hopefully) lead to better support and a new network of people who can help you through it all.
Being a young man in Spain must be very tough right now so I can see why the army(?) is appealing. It’s unfortunate about the timing, but if he’s happy, occupied and finding his place in the world, it’s one less thing for you to worry about. And I can’t imagine that he will be sent anywhere terribly dangerous for a long time, and by the time he is, he will have been properly trained to deal with it. I hope it works out well for him.
As far as relapses/progression goes, relapses tend to build over a short time, peak, stay that way for a while then very slowly improve. The whole process can sometimes take a year or even more, but many are quite short (weeks). Progression is just that - symptoms progress / gradually get worse over time. I believe that progression usually involves motor symptoms, e.g. walking, but not always. (There’s never an “always” with MS!) Remember there are a lot of conditions that can mimic MS though - your symptoms may not be MS.
I hope it’s not too long before you get some answers.
Karen x
Thank you Karen , my son is such a heart wrenching worry that I have no choice in. My health and subsequent work choices, I will have to wait for the LP results and maybe phased return to work!! Just have to hope things become clearer - I hate being this out of control. Thank you again xx