I started Tecfidera two months ago,numbness in both legs increased also problems with both knees,my ms nurse has advised me to stop taking straight away,i’ve been told I can start Lemtrada but will have to wait three months,i’ve always been a positive person but recently I’ve been finding it mentally tough,i’ve always worked hard physical jobs but had to stop working earlier this year as my knee kept collapsing and had extreme fatigue set in,i recently had a dwp medical and am awaiting their findings,how in God’s name do fellow ms sufferers keep sane.
I seem to remember that you’re relatively recently diagnosed. So it all seems to be a hell of a lot to deal with all at once.
It’s a shame you’ve got worse since being on Tecfidera, but if you are able to take Lemtrada in a few months, you may find that you don’t ever get any worse than you are now, i.e. that there’s no disability or disease progression.
Although DMDs are not designed to improve symptoms, if you find that once you’re over the side effects of the Lemtrada, and you have no further relapses, you can then concentrate on improving your fitness and can hopefully improve from Where you are at present.
And in any case, who said we stayed sane? Many of us who’ve had MS for years have found sanity to be overrated.
Sue
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Can’t argue with that x
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Was the advice to cease taking tecfidera in order to allow for the start of an alternative DMD?
Why is there a three month wait before taking your second option of Lemtrada?
(Not raising bones of contention here; just curious.)
Good luck!
I wasn’t offered an alternative
Hospital where I’ll receive the Lemtrada can only accept two patients per week
Been told i’ll start treatment in march
Went through treatment options and although Lemtrada has its serious side effects, it offers best hope of treating symptoms i currently suffer from