ln 31 yrs of SPMS - l have never seen a MS Nurse. But back to the DIY DRUGS - Yes, that is the title on top of the page of this article in Pathways. Which was MSRC - multiple sclerosis resource centre. Now MS-UK.
Now of course you are correct - the man is certainly no ‘idiot’. And l think if l was ‘bio-chemist’ and discovered l had MS - l think l would look at all and any way of helping myself.
This drug- which anyone can buy and has been used safely for 20yrs for the treatment of psoriasis. As to possible risks, he said that there is a very small risk that DMF could have some damaging effect on blood cells, liver and kidneys. So he has a blood test every six months. [As we have to do with many meds]
ln the year since he started taking DMF he has felt much better. His cognitive functions have improved and he can now go for much longer on his cross trainer. And he has started a new job helping PhD students.
ln the Pathways article [page34] is also a picture listing the kit needed for DIY DMF.
[Edited by moderator] ls the Dutch doctor he was in contact with who had years of experience with DMF in treating psoriasis. He prescribed Psorinovo which, like Tecfidera, is a slow release form of DMF. Which is what he started with at 30mg and 120mg tablets. Later he started making the DMF capsules himself as it was so much cheaper.