Good evening all,
I am new to this forum and am hoping that you will be able to offer me some advice.
Firstly, a little bit of my history: I was diagnosed with RRMS a little over 12 months ago. My first ‘episode’ was in 2011 and was pins and needles that affected my upper left hand side (head, jaw, anterior chest, and arm). 12 months later I had optic neuritis in my left eye. MRI, lumber puncture, bloods etc eventually led to my diagnosis in October last year. During the various consultant and nurse appointments that followed, DMD’s were discussed, but I chose not to go down that route as I didn’t feel ready.
In March of this year I had another relapse (loss of movement in my right hand) and agreed that maybe it was time I considered treatment. After much reading, and weighing up of pro’s and con’s I settled on Avonex as the most appropriate treatment for me, and received my first dose in May. 6 weeks later I experienced my 4th relapse, again pins and needles and again on my upper left hand side (this time my back and shoulder blade)
Still being quite new to this, I did not consider this latest episode to be significant enough to report, and so did not mention anything until my routine consultant appointment in September. However, when I did mention it, there was much discussion between the medical professionals with the overall opinion that I need to change my treatment, as Avonex is not working.
I realise that I probably have a lot to learn, (which is kind of why I’m here tonight), but the crux of my dilemma is this: Prior to starting with Avonex, I was advised that I may experience some side effects for up to 12 weeks whilst my body became accustomed to the drug, but if this is the case why then is it possible to categorically claim that the drug is not working after only 6 weeks of treatment? It feels very much like a knee jerk reaction to me, but since I have no yard stick against which to compare, I may be totally wrong in my judgement.
I would be very grateful for your thoughts and comments and fully appreciate any help that you may be able to offer.