Just saying hi 😊

Primary progressive MS
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Looking to connect with others who have PPMS

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Hello, my name is Graham ànd I think you’reAnne?

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My names Kelly haha a duno why it’s said Anne I never chose it lol I must have saved it by mistake

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Hi My name is Gillian x

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hello!

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Hi, Anne1..or is it Kelly :face_with_hand_over_mouth:

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Hi, everyone I’m Lorna im 41 and I have PPMS. I’m doing ok how are you? Xx

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:rofl::rofl::rofl:kELLY!! Lol

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Hey! I’m good! How are you? I’m 37 this dec just wanted to make contact with others lol xx

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Hey! How are u? Xx

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Hey Gillian how are u? Xx

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I’m ok thanks.

Would you mind me asking how you came to get your diagnosis?

I got diagnosed earlier this year and have started treatment, I feel there isn’t as much to offer PPMS x

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Hi My name is Gillian x

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Hi Anne ,I am ok thanks .

I was diagnosed last September ,it is a struggle most days suffering with so many different symptoms.

My legs are getting worse but there is no treatment for me only painkillers .

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Hey! Ye I was having issues with my left leg it gave way when I was out running and gradually became weaker n weaker I thought it was a trapped nerve at first but ye an mri stated straight away ms. I’m not on any treatment as my ms has never been active when carried out mri’s so ye it’s good but also not as I’d rather be treating it lol they are working on stuff the now to help with ppms iv read its passed the first stage just another 2 to go its a pill that u take that can help repair the myelin sheath and reverse some of the damage aparantly so i stay hopeful for us xx