Hi Soph, stress is not good for ms and can make symptoms a lot worse. I get a lot of pains in my hands often feel like they have been stuck in a freezer, I take amatriptyline for that. Not sure how your first neuro came up with your dx but I had several mris and a lumber puncture to get to my dx. I don’t think a LP is strictly necessary but it does speed up the process and to be honest it wasn’t that bad. I don’t know if the neuro will automatically prescribe meds or DMDs not all do. I have had a course of IV steroids to clear optic neuritis but other than that he thought vit d supplements were important. Have met my ms nurse but haven’t used her so can’t answer that one. Chis x
I’ve had lots of MRI’s and a lumbar puncture (worst experience of my life)! Been sent here there and every where since august. Was told I was imagining things and nothing was wrong, then I was told maybe ms, then it wasn’t ms, then it might have been ms again, then I was told 90% sure it’s not ns, then I was finally told it was definitely ms and that I have now got to wait for an appt with an ms specialist who can help me further. I’ve just started to take vit D. X
[quote=“midnightmoon”]
Uh oh! SORRY!!! I didn’t mean to scare anyone!
There is a very rare and severe form of MS that people often USED to die from. That was what Jacqueline Du Pre had. These days, we know far more about MS and there are brilliant meds that mean that it just doesn’t happen very often at all.
Believe me - if you had Marburg’s, you would know it already. It is very aggressive.
Sorry again!
Kx
Ah yes, after I posted that above ^ I then went on to google ‘Jaqueline Du Pre’ and read that she died back in the 80’s (there’s not an awful lot of info I could find actually about how her MS affected her) when meds that are around today weren’t back then. Medical science has moved on leaps and bounds since then. It also prompted me to read up on the types of drugs used in MS and I actually feel a lot less stressed right now so some good came from your post about Jaqueline. If I do have MS, I am not going to die and it can be managed. I hope I can keep this positiive attitude though. I know everyone has their ‘down’ days when that feeling of hopelessness kicks in. I am feeling very good right now and almost all of my symptoms, after 8 weeks, have almost gone. So maybe if I have another ‘attack’ I won’t be so positive, but who can tell.
Sorry to hijack a thread here. I do tend to be a bit spontaneous. I am sure it’s an ADHD thing. I do tend to interrupt conversations in real life, oops. You’ll get used to me, I hope 