Hi Alysea, I’m so sorry to hear you’ve been having such a rough time.
Although PPMS usually affects people over 40 it can affect much younger people. In fact a year or so ago we had a young woman on here in her early 20s diagnosed (dx) PPMS. So like all things MS, there are no hard and fast rules.
The same with the eyes, it’s usually people with RRMS or secondary progressive who have eye problems, but again some people with PPMS have eye problems. In fact one of our regular users with PPMS has got optic neuritis at the moment.
All you can do is hang in there and wait and see. I would say it does sound like PPMS but then again your bladder reacted well with steroids which would not normally happen with PPMS. But again (I know it’s bloody confusing!!!) we have had people on here who’s neuro’s have tried them on steroids with some success.
I know it’s a common belief that PPMS is the ‘worst’ MS, but that’s not necessarily so. Aggressive RRMS can be very bad and more disabling than PPMS.
Another common myth about PPMS is that once you’ve got a symptom that’s it, you’ve got it forever. Not true! Symptoms can come and go, get worse and then get better again. In fact it can be very changeable in even a day! I can start a day very bad and pick up later… or visa versa. I can’t start a new paragraph for some reason… so will have to finish with a chunk of text. Keep in mind that it doesn’t really matter what ‘type’ of MS you have… MS is MS… and that it really does get easier with time. I know that’s hard to believe so you’re going to have to trust me. Come on here with whatever questions you have. NOTHING is taboo! This board is a lifesaver… really very supportive group of people. I’m very glad you found us. Bye for now, Pat xx