I need someone to tell and give advise about all my wacky goings on…any help would be greatly appreciated ! Oh and i 38 year old female with 4 kids, married and basically healthy!
Ok here goes…I got a pain in right side of my neck (back of head round to underneath ear) on Monday 5th march in afternoon. Thought ok i must have hurt it but it was very painful burning feeling. Took some painkillers in eve and went to bed. Got up 6th march in morning and it was worse! made appt for dr’s and went at 12 noon. She said sounds like shingles…wait couple days see if blisters appear and if not come back and see me. Had chickenpox 3 times in life before so not that unusual to get shingles and as it was going round my kids school i guessed it was possibility ! By 4pm that same day i realised my hand and foot felt numb? was colder than rest of body and if i pinched the skin it was totally numb like i’d been to dentist! Thought it was strange but went to bed and ignored it. Woke up 7th march and was totally numb on entire left side of body…from chin to toes…everywhere was completely numb including my underneath (erm…personal bits). Admit was in slight state of panic by now and very upset that i couldn’t feel anything down there !
Rang GP and explained about numbness and said is this normal for shingles…she said NO get butt down here now and we see you! Got there and they ordered loads of blood tests and come back on 13th march for results.
Went back for reults…by now i am super clumsy, having alot of blonde moments and brain fog. Cant feel hot/cold AT ALL! totally weak in arma nd leg on that side and super tired ! She reviewed blood test results and ruled out usual suspects for symptoms. Thyroid…perfect, vit B12…fine, Calcuim…fine, blood count…good, no infection and nothing unusal in tests! so…ok then what now. She then phoned my local hospital and spoke to TIA unit…did physical exam whilst there and i had no babinsky reflex in left foot and dimished knee jerk reflex! kept asking if face was numb…said NO. Told me she wanted me to go to TIA unit in morning as it was urgent i be seen.
14th march arrived TIA unit to find out it was a stroke unit…now i really crapping my pants! Had MRI head and scan on arteries in neck…went back next day for MRI on neck as head one showed no stroke! All tests showed no stroke…did eeg and physical and agreed i had defined weakness on left side and was confused as to why. Dr in TIA unit said ok no stroke and i have no idea whats going on…he new results of blood tests and said go back to GP.
19th March…back to GP and explained what TIA unit said and explained new symptoms to him. Annoying buzz in right saide back of head…ants running around up and down left side of whole body, feel weak and shaking after bath or when doing housework…shaking worse in morning and random times throughout day, and when flex neck forward get major buzz all the way to heel of left foot! Clumsy and writing got worse, leg shaking when dip clutch in car, sharp pain in right eye…lasted 1 whole day ! and annoying twitch in right eyelid. Couldn’t orgasm at all (not surprising when numb i guess). Numbness improved slightly to mild numbness except in back, part left arm and thigh…they still totally numb otherwise slight improvement. Although hot/cold sensation still cant tell which is which…although cold seems to make my bones hurt and i eventually can work it out…dangerous with hot tho as have burnt myself by accident. Clumsiness same still bad and i forget simple things and seem to have slight hearing loss in right ear…hubby is getting annoyed and i dont blame him as i have dumped more than a few hot coffees in his lap!
GP then says he thinks i have MS and he referring me to neurologist…i said wouldn’t the stroke guy have seen that on MRI if it was, he said no he was only looking for clots/stroke evidence and wouldn’t be looking for anything else! Well i no expert but find it insulting that a TIA dr wouldn’t look for anything else, surely they intelligent enough to notice MS symptoms on an MRI ??
26th March…and got neuro appt for 13th june! Left side has now stopped with the ants and progressed to severe sunburn feeling…not pleasant at all! I also had an awful tight side on left, around middle like someone had grabbed the muscle from my neck on left and pulled…under my arm and my waist was so tight it felt like i had half a corset on too tight ! was awful…lasted the whole day…eventually got to sleep but i think i just passed out from lack of oxygen LOL!
Its now 15th may and i still have same symptoms nothing has improved and apart from pooing my pants on saturday…which was MORTIFYING! nothing different! I still shake on and off, i still clumsy and weak…still partially numb on left and am annoyed with it all. GP said he would have put me on betablockers but as i have asthma he cant…so no meds, no improvements…kinda loosing hope that it is something silly or curable. Its 10 weeks today since the onset and am wondering how much longer this will last…is it ever going to relapse…if its MS that is? Any ideas or suggestions as to what i can do to help myself now?
Thanks for listening to my winge…really appreciate it everyone ! xx