Is anyone taking tolebrutinib
Hey Carrie, welcome! A friend of mine tried tolebrutinib recently. They said the side effects were mild, but it helped manage their symptoms quite well.
It’s still on phase3 clinical trial. The trial is closed to new entrants. Results are encouraging. In fact all the BTKi’s are reporting encouraging results compared to drugs like ocrelizumab.
I was on the PPMS trial for Fenebrutinib last year but had to halt after 4 months due to a spike in liver toxicity. A shame as in other respects, I’d say I was responding to the drug. It would appear that all the -brutinibs have this issue which could affect a significant % and when licenced, could lead to close monitoring in the initial few weeks.
Thank you so much.
Thank you for this info, I do hope it is available on prescription soon!
Shame I missed the trial.
I wish you the very best x