Invisible App

Hi - hope people are having a good week :slight_smile: Just wondering whether anyone has any experience / feedback on the ‘invisible’ app. I’m newly diagnosed and am TERRIBLE at pacing myself. I keep thinking I am superwoman and am really stubborn that MS won’t define me…but think I am risking burying my head in the sand and not managing my condition properly. I’ve been really struggling with fatigue these past few days, and there doesn’t seem any let up even if I rest. Everything just seems sooooo heavy so I was wondering if the invisible app/wearable might help. But it’s marketed for POTS and long Covid and doesn’t cover MS so wondering whether it will actually be able to reflective or whether I’d be chucking money down the drain and I just need to learn to listen to my body and maybe accept I can’t just ‘push though’ the fatigue. Any thought appreciated :slight_smile:

I’m definitely not the right person to be responding to this because I’m a sucker for a gadget myself and know from personal experience that wearables and their oh-so-convincing- looking data can sometimes get in the way of just paying proper attention to what your body needs. So I’ll stop there. :grinning_face:

1 Like

Haha, it seems we are cut from the same cloth!!! :joy:

1 Like

Thank you for responding though :slight_smile:

1 Like

There’s a group on Facebook called black sheep society, was started by a lady in America. She’s been trying the wearable tracker and has posted some clips of feedback. Kiel shipp, have a look on Facebook.

1 Like

Amazing thank you so much :blush:

I’m absolutely no expert on this but my thinking is that MS Fatigue comes and goes with no reference to how much energy you have expended so, no if it was me I wouldn’t use such devices.

Quite bizarrely there are also some suggestions that when felling fatigued some exercise can help. I fear that for us folk with MS it all comes down to awareness and self management

2 Likes

Thank you - that’s what I was wondering. I feel floored this week but have done less than last week when I felt great. Though my MS nurse called me today about something else and I mentioned how fatigued I was and she said maybe the steroids I had in hospital are wearing off, as they could have given me a ‘false’ high. I’m not liking this ‘wait and see what I wake up like’ malarkey…it’s like a distasteful game of lucky dip!

1 Like

Hi, no idea on the app im afraid, but i was told to think of your energy levels like a mobile phone. You have apps going on in the background - breathing, thinking etc and you mustn’t let your levels get down below 30% as it will take longer to recharge.
Also think of jobs in time not tasks i.e if you want to hoover the house - think you have energy for 20 minutes, so hoover for 20 minutes and then rest, have a coffee and recharge - dont think I will hoover the whole house and then feel knackered, because then your batteries will be down and it may take the rest of the day to recover.
Hope that made sense

2 Likes