I’ve come to my own conclusion that RR is very much an unknown ticking time bomb, even if the relapses are few and far between.
Unfortunately it might only take the one particularly nasty relapse to have a life changing, devastating outcome, and it’s those people who are RR and not on DMD’s due to the lack of relapses that are probably at more risk, just as my sister was.
So in a sense a slow progression onto SP is something perhaps you learn to live with, albeit very hard to deal with.
However, and this is only my personal thoughts, and especially after seeing what has recently happened, in a blink of an eye to my sister, I feel “safer” being told that I’m now probably transitioned to SP.
Yes MS is now with me every day, and it’s hard work to deal with physically, but in a funny way I’m starting to learn my limits rather than just push myself until I “crash”, but also it’s a mental relief to be told by your neuro and read the stats that relapsing tends to be less of a risk when SP.
Obviously a relapse is possible, nothings guaranteed with MS, but it is a bit of a comfort when the general risks of having one show to drop when SP.
When I used to look at the graph of MS, RR, SP, PPMS I used to always worry that I would move on from RR, but in reality the worry should of been was, what if I’m not on DMD’s and one day I have “THE” relapse that changed everything !
My sister who is still classed as RR is now in a far far far worse physical and probably mental condition than Iam who has “transitioned” to SP, and it’s down to that one relapse !