In limbo - advice welcome!

Hi,

Newbie here and looking for some advice/reassurance.

Following two periods of pins and needles which occurred a year apart, my GP sent me for an MRI on my brain just in case.

Following the MRI, my GP told me I had MS. The conversation lasted around 5 minutes. I said I was confused and asked if it was a definite diagnosis and he said he couldn’t diagnose, but given my scan it would be a miracle if I didn’t have it (?!?!).

Anyway, he referred me to a neurologist who claimed that young doctors are always too quick to diagnose and she didn’t suspect MS but sent me for an MRI on my brain and scan with dye just to be sure.

Following my second scan, I received a letter addressed to another hospital asking for a second opinion/to take over management of me. The letter stated I had “three large lesions” on my spine and white matter lesions on my brain consistent with MS.

The letter which wasn’t even addressed to me is the only communication I’ve had following my second scan. Is this normal? Does anyone else have similar experiences? How long will I have to wait for the second hospital to get in touch?

Any advice or similar experiences would be appreciated as I’m not really sure where I stand currently or what is going to happen next.

Thank you all.

Hi jr, your story hints at my experience…
In 1998 I was having mobility problems…a heavy left leg, stumbles, serious falls, arm spasms, bladder and bowel accidents, fatigue.

I saw a neuro who said it was typical PPMS, but proof was needed on MRI, LP, EMG. I had several of each of a few years, but as none showed anything, I went undiagnosed for 22 years!

I finally went to a specialist hospital in Liverpool and got diagnosed with PPMS.

Hang in there chuck.
Boudsx

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