Hi all, I hope you’re all well and apologies I’ve been a while. Truthfully, I’ve been pre-occupied and with a bit of a stress head etc. I managed to get the sack from my last contract, anyway putting that all aside, lots has been going on.
I saw a consultant in London a few weeks back and explained some stuff to him that was not really considered when I was diagnosed and after what, 3+ years, I’m still under gastroenterology with no actual diagnosis or dismissal… colonoscopy again next week (which might even prompt the doctor to even tell me I had Crohns as that’s what happened last time!) but my biopsies don’t match it. I even had the capsule endoscopy which also suggested crohns but they won’t diagnose. I think they’re just gonna do even more biopsies this time around
So, the jury is still out on that one. Anyway, after I explained to the consultant why I felt I might have an element of RRMS in there, he basically suggested a more drastic approach was in order and we discussed 3 DMDs, nothing wimpy tho, I went to see the MS nurses there for the required JC virus test. I see him tomorrow to discuss further…
So the AMAZING bit is that I had a call yesterday from a doctor who’d seen my MRI and it appears I qualify for a trial… I’ll find out for certain if this is the case when I see her on Weds. I can confirm she’s genuine and she’s emailed me the 17 page patient info.
Lucky me, I have an active lesion! I’m so happy just cos it might put “hope” back in my vocabulary!
I’ll fill you in more if it’s gonna actually happen