My limbo journey began back in the summer of last year when I began experiencing a catalogue of symptoms I could only place as being those of Multiple Sclerosis… I was terrified. You can see my journey in this forum perhaps if you do a search for my username? I posted here throughout the course of my limbo.
These were my most notable symptoms:
I had terrible brain fog that I made me feel out-right empty-headed: I could gaze ahead for hours on end with not a single thought pass through my brain.
I had terrible fatigue that left me pretty much bed-bound.
I had extremely strange tingly numbness in my upper thighs that I noticed when I couldn’t feel the razor as I shaved my legs.
I also had tingly numbness (on and off) in my left cheek and around my lips.
My co-ordination began decreasing as I found myself having to think before I put my first foot out to walk down the stairs. If I didn’t do this, I risked tripping over.
I have “one and a half” syndrome in my eyes: something found in some MS patients.
My voice felt weaker and less strong than before.
Muscles “glitching” in my hands and limbs - moving suddenly or pulsing.
The fear of having this condition that I previously didn’t know much about, and contemplating the uncertainty of the rest of my life was such, that it led to me having a full-on break down in my doctors office and very quicky becoming suicidal. I was taken to accident and emergency requiring immediate attention physically and psychologically and put in the hands of a mental health crisis care team (who were terrible, but that’s another story entirely!).
I was referred to a neurologist and given an MRI scan of my brain, neck, and spine.
To cut a longish story short, (and to cut down the long waiting list times!), the case is closed on my neurology. - All of my scans have come back fine, and my neuro is happy to refer me to an eye doctor to see about my “one and a half” syndrome which relate just to my eyes.
I see the pattern in my concern. - It seems that the problems I listed were as a result of extreme stress and anxiety. I see the pattern whenever I feel I am put under a lot of stress, I also have tendancies of hypochondriasis, which to me is a Master at mimicking symptoms of other things.
Whilst I am at a point in my life where I can now more soberly accept the fact that I could still have MS, or still get it at some point in my life, much more so than before, I must urge those of you who have been in my position who may be fearing for their lives on the basis of any scary symptoms they may be experiencing, to TRY to stay as calm as humanly possible.
You do not know if you have it or not. But one thing is certain here: the more you worry, the more you look up symptoms, the more symptoms you feel you have, and the more ill you will feel!
The best thing you can do for yourself, in ANY case, is to try to relax and just do things that make you happy and calm.
Your body will thank you for this no matter what you do or do not have.
Wishing you all peace.
- Shiller. x