If you do get a diagnosis of MS and meet the criteria for treatment with DMDs you will probably be passed to Dr Shehu [my consultant. He is an excellent Neuro and a really good guy.
Dr Kenton also has a very good reputation with patients and staff.
There are three dedicated MS Nurses who will reply to messages left on the answephone within 24 hours. There is also a day unit for patients on Tysabri and those getting steroids - staff there are great [pat and Di].
Liz
[/quote] How were you diagnosed. Dr kenton hasnt replied to any of my emails. Wont the government help me as im in constant pain camt do things like everyone else extra cash or help driving arm kills me all the time.[/quote]
I was diagnosed in the dark old days when there were no MRIs. My diagnosis was based on history, clinical findings and LP and by ruling out other conditions [Hughes, Lymes etc].
I have had a number of MRIs since Dr Shehu took over from my previous Consultant [retired] but there was never any doubt about the diagnosis.
If you had titled the thread “unsure of diagnosis” or “should I get a second opinion”, I think you would have had a far better response than saying that MS is fictitious.
So what can we deduce from your ramblings.
Positive LP result
White spots on MRI
Both of which are common in a few illnesses.
So you need to request blood tests, although I am surprised the neurologist hasn’t already as that was the first thing they did with me. These will rule out some of the illnesses which present with the above results.
It appears you are convincing yourself you have Lymes Disease and a simple blood test would rule this out.
So my suggestion is to ring your neuros secretary and get an appointment, it is all too easy to forget to email someone back but if you have an appointment then the questions will be answered there and then.
I would also not call the MS Society Research line and accuse them of spending the funds on tea and coffee, a sure fire way to get put to the bottom of the pile.
I have to say your posts tend to be confrontational and that is not a way to get good advice, if you have the same manner on the phone I’m sure most people would begin to stutter and not know what to respond with.
So put your energy into something that provides a definitive answer, asking for more tests and if it is MS an explanation as to why they have come to this conclusion.
With regard to pain, you will need to ask your neuro for a prescription. Many of us on here are taking Amitriptyline, Gabapentin or Pregablin, if you don’t want to take drugs then try a complementary therapy. It’s your choice.
[quote=“Karina1980”] Nazra you seem to have ignored people’s questions and have skirted round them. Both myself and Tina have asked question and you have ignored them [/quote] Have u havent i already answered. Let me see i havent skirted around anything this thread is huge lots of ppl have askee questions. Who the hell is tina?
[quote=“Karina1980”] What symptoms did you present with and how long ago? [/quote] Ive already answered this. A yr ago i had tb two months after treatment right handed pain numbness neck spasm shoukder pain headachew fatigue. I swear i have already been through this…yawn.
If you want help then people are here but if you want to have a negative attitude to people who are trying to help then that is not the way to go! I think if you are convinced that you have lymes disease then there is nothing anyone can say to convince you otherwise. I wish you luck on your tests
I agree with Rufus. Put your energy into productive issues. You probably do not realise you are presenting as a very angry confrontational human being. I am sure you do not mean to be deliberately rude but your tone can to some people present as offensive. Asking for rather than demanding answers is far more likely to get you what you are seeking. If your e-mails to the medics were in the same tone as your postings I would certainly put your email to the bottom of the pile. I understand it can be scary and lonely but the people on this forum are trying to help with their suggestions. You are asking that we open our minds to your suggestions but you are not allowing others the same courtesy. Please think about it. Posting “who the hell is Tina” is not helpful. I wish you well in your quest for answers.
Bit rude there mate - Tina was the first person to have the courtesy to reply to you. If you read your replies, you’d know that.
[/quote] Actually they replied. So did their secretaries. I tried the cosy nicey nice way wasnt working so i basically cussed them without swearing but i got the message accross now they all replied. Thats what powels and the cheif executives offices are for. To give them a jogg along far too much time.is wastes on bueracy and pointlesa meetings than on actually speeding up care and treatments.
OK, no problem - no offence taken. It can be confusing when we have screen names, but sometimes sign with our real names too. I usually do put my real name in posts, but I answer to either. Tina
can i ask what you do for a living and also i get really offended people slagging off the nhs , we are extremely lucky in this country to get the excellent care and treatment provided by the nhs and all the hard working people who work in it, me included. with all my health problems i soldier on helping people like you.
You may still be failing to see the bigger picture. They may have replied but you will have upset them just the way you have everyone else and they will not be going out of their way to help you rather the opposite I think. Please consider your attitude in the long run it will not help you. Such a shame that you feel you have to behave in this way. Hope that in time you will mature and be able to see others are just as entitled to their opinions as you are and by belittling them you are doing yourself and them a great disservice. A little kindness and respect goes a long way. I do hope you find your holy grail and some peace along the way.
You may still be failing to see the bigger picture. They may have replied but you will have upset them just the way you have everyone else and they will not be going out of their way to help you rather the opposite I think. Please consider your attitude in the long run it will not help you. Such a shame that you feel you have to behave in this way. Hope that in time you will mature and be able to see others are just as entitled to their opinions as you are and by belittling them you are doing yourself and them a great disservice. A little kindness and respect goes a long way. I do hope you find your holy grail and some peace along the way.
[/quote] Can you tell me why compared to the rest of Europe the nhs has this appauling waiting lists that are almost alien to other countries? For most people the nhs isnt free as we pay taxes we pay your wages i dont care if your offended do a good job and people will praise you its not only me who despises the nhs its majority of the country nurses are lazy, consultants turn up once a week the food is rank, hospitals are dirty and if your not on the ball thats it youve had it. We rank the lowest and it came in the news that patient carr here is rubbish and people are very disatisfied. Jus look at the A n E Crisis. Why are you tryingto sugar coat the situations. Now is not a goodtime to be ill. Junior doctors are overworked and staff are not trained properly leadinh to basic errors that cost lives each year. I dont really care if my consultants dislike me i need my tests and i need to rule out other causes and now thats finallt happening. Thats the main thing, im sure when the get 200,000 quid a year one in your face patient wont have them crying in their golden pillow cases.