Nazra, I’m not sure whether you are writing your comments to get a reaction from people or whether you are in denial of a possible MS diagnosis, either way they are not welcome.
Darren your already going througj so much would it be possible for you to ask for lyme antibiotics for two weeks see how you feel. Thats what i will do if i reciver i will let you all know. Im just creating awareness i dont trust these doctoctors at all. Did u have o bands in ur LP.
[quote=“rufus”]
Nazra, I’m not sure whether you are writing your comments to get a reaction from people or whether you are in denial of a possible MS diagnosis, either way they are not welcome.
[/quote] Ok prove me wrong. How many of you guys have had a LP SHOWING O bands and what have your neuros ruled out because cns infections can cause demyenation too. So can tb so can tumours so can lyme etc. Gullian bare syndrome
Great you’ve read wikipedia! Presence of O Bands is also apparent in Syphillis, however I like many others on this site have been through numerous tests, blood tests, MRIs, LPs etc as the last thing the neuro wants to confirm is that it is actually MS. They rule out every other possibility before they eventually confirm that it is, which is why it took 4 years to get my diagnosis. So if you want to put antibiotics into your body that are not necessary, go ahead but I am happy in the knowledge that my consultant knows best.
Nazra - the blood tests for Lyme disease are strategically tested throughout the uk. If a blood test wasn’t carried out for you then that is unfortunate but routinely blood tests are done for Lyme disease. Most people on here are aware of vitamin d and vitamin b levels and I would say that a lot of consultants are also aware of this and vitamin d now does seem to be a blood test that is carried out in the ms testing process. It sounds to be honest that you are in denial and clutching at straws but I hope that it is just lymes disease in your case and if not then everyone on here are a friendly bunch so will be here to chat should you need to.
So how come they are diagnosing me with one lp then
I have had all sorts of tests as at first I was sen to a stroke clinic! My neuro is very goo at his job, my relapses have been in line with those of ms. Lyme disease does not cause optic neuritis. Denial is one if the stages you go through when being diagnosed, I did, I felt angry scare all sorts! I so wanted it to be Lyme disease, but unfortunately there is nothin we can do. You have I learn to accept your diagnosis and then begin kickin it’s ass. Disease modifying drugs are made up of natural components in our bodies anyway called interferon beta alpha 1. I’m sorry you’re feelin this way. I hope you can come to terms with things soon.
shes just trying to wind everyone up dont bite get it lol, bite from ticks.Just roll it off your back like a duck to water xxxx julie
I do hope you find some respite from your obvious anger and resentment. We all at some point have to rely on experts in all walks of life to help us be it mechanics to fix cars, builders, therapists, and of course doctors. If you are unhappy with your doctor seek a second opinion and by all means question what they say but a little sensitivity would probably be appreciated by those on the forum bringing words of wisdom and support to many of us seeking it.
[quote=“julie f”]
shes just trying to wind everyone up dont bite get it lol, bite from ticks.Just roll it off your back like a duck to water xxxx julie
[/quote] R u blonde r u all blonde I like to think out the box.
at least i can spell lol
[quote=“julie f”]
shes just trying to wind everyone up dont bite get it lol, bite from ticks.Just roll it off your back like a duck to water xxxx julie
[/quote] Rather than using balls in my earlier post I was going to say I don’t know how you have the nerve but I thought that wasn’t the right choice hee hee hee
Er no i am not in denial why should i blindly accept a diagnises from a neuro when i can read and have the ability to seek a differential diagnoses.
[quote=“julie f”]
at least i can spell lol
[/quote] Lmaoo its this dam touch screen phone.
[quote=“Nazra”] [quote=julie f]
shes just trying to wind everyone up dont bite get it lol, bite from ticks.Just roll it off your back like a duck to water xxxx julie
[/quote] R u blonde r u all blonde I like to think out the box.[/quote] You have to say it as it is. Ppl prob have a comfort zone they are afraid to vebture out of.
It’s clear that you don’t want to accept the diagnosis and that’s fine that’s your personal choice. Earlier on you said you’d had MRI and lp and blood tests - now your implying that you’ve only had lp. Something doesn’t quite add up with your story and I suspect that you are probably just here for fun and I would suggest that the moderators take a look at this as something seems off here
[quote=“Karina1980”] It’s clear that you don’t want to accept the diagnosis and that’s fine that’s your personal choice. Earlier on you said you’d had MRI and lp and blood tests - now your implying that you’ve only had lp. Something doesn’t quite add up with your story and I suspect that you are probably just here for fun and I would suggest that the moderators take a look at this as something seems off here [/quote] No i said i had an lp and an mri somrone said they had lots of bloods done i havent i only had vit b and d which i got done from my gp myself. Maybr my neuro will do them for me. But they wrote to my gp saying based on my o bands in csf and mri its ms. How can they say that when my neurological examination showed nothing.
I got the lyme done by hounding my infectious diseases consultant who finally gave in and ive it done today.
So you all on the nhs who r these fantastic consultants ive emailed both of mibe asking nine qs im seeing them in eight days. Im from coventry.
A numerological examination doesn’t necessarily show any problems - especially if you have them done outside of a relapse/episode. Spots on an MRI look different in Lyme disease than lesions on an MRI in ms- neurologists and radiologists know what to look for and are trained in being able to differentiate between the two. I understand that you are going to look for every alternative diagnosis because its part of the process in dealing with the diagnosis. The question I have is that you must have presented to the gp with neurological problems/symptoms for them to refer you to the neurologist. It’s worth pointing out that the statistics of having neurological symptoms presenting in Lyme disease is actually only around 12% of people so quite a low number.