I’ve been on this MS journey for about 2 years now, finally diagnosed last week with RRMS though I’d known it was coming for a while. This is my first time posting, or in fact reaching out for any kind of support (I really wish I had sooner!).
I have been told that I have very active MS. My consultant wants me to start DMT right away, following a relapse a couple of weeks ago.
I’m very lucky as I am still mobile. However I’m really struggling with having MS, and with making certain life decisions. I was recently promoted at work but this most recent relapse impacted my ability to do my job. Fortunately I now appear to be on the mend but it was a bit of an unpleasant wake up call.
I’m 33, married three years ago. Now was the time when my husband and I had planned on starting a family. I lost my mother two years ago, and don’t have any other family who we could call upon for support. Before my diagnosis that wouldn’t have been a problem, but now I worry that I couldn’t care for a child properly. I’m surrounded by friends with children, or who are falling pregnant.
I know my story is probably similar to many people’s- I just wondered how you cope with trying to make life decisions in the face of such uncertainty? Right now I’m so afraid and upset, I worry that I won’t be able to continue working, that I’ll never be a mother and that I’ll just become a burden to my husband. MS feels incredibly isolating.
Any guidance would really be appreciated. I’m so exhausted with being frightened all the time.