I see mine every 6 months, shes brilliant, and also I have a direct line for emergencies which is an ansa phone but unfortunately she promises a reply within 10 working days??! Not her doing of course, its the NHS once again…
Suex
Even if it was private, I can’t see what on earth the point would be, of going every month.
Most private MS consultants are going to be the very same one you’d be allocated on the NHS, so they’re not going to have anything different to say, that would justify seeing them 12 times as much.
I’m sure no insurance company would fork out for that: usually they only cover up to diagnosis anyway, and won’t keep paying for routine management, post diagnosis. I suppose anyone who had the money could pay to see a consultant privately once a month. But at £200 a shot (at least), it would strike me as very poor value for money. They wouldn’t come up with some miracle unknown to the NHS, and you could spend £200-a-month on something a whole lot nicer than completely unnecessary hospital visits. I would actually think it a bit unethical of the consultant to go along with it, if they didn’t have anything radical to offer, and it was basically £200 a time for a chat about something they can’t fix anyway.
Tina
Glad l am not on my own -George - As for the Duck Billed Platerpus - have you got a good recipe!!!
Kevin - Do you really see your neurotic every month - or is it a typo - and should be once a year.
F.
Hi Kevin, by ms specialist do you mean a neurologist or do you mean an ms nurse. I haven’t seen my neurologist for a good few years because he passed me on to the nurse. I’m happy with that. Although I manage to only see the nurses once a year, which I tolerate, one of the nurses tries to get me to go in much more frequently, but I alway just say to her that the consultant said to see her annually. I think she is trying to create work to justify having two nurses. Maybe yours is doing the same? Cheryl:-)
I mean ms nurse at the clinic, and i see her for just check ups really, I’m sure there will come a time when i see her less often but at the moment when i go she books to see me again in 4 weeks time, The nerologist at the hospital i see every 3-4 months
we don;t have an ms nurse in our area of the country
hi
i see neuro every 6 months and have a very good ms nurse who is available most days
baz
Hi Kevin, I see the MS nurse quite alot as I am new to this MS thing. I am going at the beginning of next month to get my bloods checked. then i think it will be 3 monthly.
x
Hi Kevin. I don’t see neuro or MS nurse at all now. Would refer myself to hospital if I had a bad relapse but I guess as I’m now in SPMS they don’t want to waste their time or mine. Suits me as too much hassle getting up to hosital for appointments, and being told nothing’s changed. Specialist said he’d let me know if there was ever a cure!
, Lucky if i see my MS specialist once a year and when i do go i never get offered any help just always seem to try get me to use 2 different meds that i have tried twice, once while i was still at work and again when i had to give up work and driving lessons which resulted in making me worse not better . specialist wants to see me in 6 months but no details as to why. But never offered me any other meds so i just stick with my usual painkillers+caffiene and try rest when i can.
At begining i used to have a lovely MS nurse who would come out to see me every 6/8wks at home to check how i was but now you’re suppose to phone them and thats when they can fit you in, but how the hell can you contact them if like before i was paralysed and cudn’t speak ??? To be honest it feels like i’ve been diagnosed and abandoned and local council are not any better.
wendz x
When i think about it half of my appointments even yearly get MS nurse instead, who can’t prescribe meds anyway so what’s the point ?? So sometimes it works out every 2yrs i see actual MS specialist neurologist, who if not heard of your symptom as MS it must be in my head even though GP as ruled out anything else it could possibly be.
wendz x
Hello,
I have an appointment with my MS neurologist about once every 6 months. If something untoward happens I can always email him, I treasure that facility cos I know he is always there. I’m lucky cos I attend and speak at his presentations and that is not an appointment, about 4 - 5 times a year
I have just started ASCEND trial for SPMS so see another MS neurologist at same hospital once a month.
I go to a local MS physiotherapy clinic every couple of weeks and sometimes they might want to see me weekly as well. They can help me with issues like walking, balance.
Yup I’m lucky to see all these different people & all so helpful but none the less wish I didn’t have MS.
Patrick