How long have you had ms please ????

Now will the real Anonymous please step forward.

Hi ,

Interesting thread.

1989 I started noticing symptoms and went to Dr - tingling and lack of sense of touch in fingers - no diagnosis.

1998 diagnosed with benign MS after numb arm and other symptoms. Given MRI and lumber puncture.

Iā€™m 58 so 30 years of symptoms. Very slow progression for 25 years, now SSP major problems walking, use stick/ scooter.

Jen

to all the anonymous posters iā€™m the slim shady, the real slim shady will the real slim shady please stand up.

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The real anynomous has already stepped forward a while ago. Iā€™m anynomous two but for you, and you guys only, I, the second anynomous will now not tick anynomous for only this timeā€¦ youā€™re welcome :wink:

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First symptoms 22 years ago but got a diagnosis 11 years ago.

Dxā€¦d 2012. Let say an unwelcome 50th Birthday present! Now classified as SPMS. Whatever MS STINKS!

This looks like a game of Top Trumps!

I always though that my first MS symptom was an optic neuritis attack in 1985. However, after chatting to a mate, I can remember numbness in my left hand from about 1982/3 and I was diagnosed in 1991. If my maths is correct, that means 36 years with it having a go at my body and 28 years since diagnosis. Tempus fugitā€¦

My life after being diagnosed I think of as my second life, and after a long journey it is now a good life. Itā€™s better than the alternative.

Keep smiling.

ps: Iā€™m 56 years old :slight_smile:

the plural of ā€˜anonymousā€™ is ā€˜anonymousesā€™

Diagnosed 13/3/2013 after an incident of ON in 2012 and a subsequent MRI showing over 10 lesions throughout my brain.

Iā€™d had tingling sensations, random areas of burning pain, feelings of water running down my legs when there was nothing there and overwhelming fatigue in years leading up to diagnosis. The consultant thought Iā€™d probably had it 5 years prior to diagnosis.

Apparently, Iā€™ve already answered the original questions.

First symptom almost exactly 22 years ago - a numb finger that soon turned into numb legs - it was a 30th birthday present. And I never even put it on my ā€˜wish listā€™.

Saw neurologist, was tested a couple of months later as an inpatient with MRI, LP and VEP. No one mentioned even the possibility of MS so I thought I was a medical mystery. Given IV steroids. The result of the tests: two demyelinating lesions, brain and spine, positive O bands, discharge letter stated ā€˜demyelinating condition, but we wonā€™t mention MS unless she specifically asksā€™. That was the days when specialists used to write to GPs and not copy patients in. I still thought I was a total medical mystery.

Finally diagnosed April 2002, so 17 years almost since diagnosis. And I wouldnā€™t change a thing about the 5 years that I didnā€™t know it was MS. I might have had a few relapses (fell over a few times, blamed it on the booze; dropped a few full pint glasses, damn it, drunk again; had ON twice, drove with double vision on the A1 in snow - not recommended!; pins and needles plus horrible spasms from time to time). But I worked hard, played very hard, took risks with career and jobs.

Iā€™m so glad that in 1997 we didnā€™t have the internet in the same way we do now. Iā€™d probably have spent those 5 years partly in limbo and partly diagnosed. I bet I wouldnā€™t have earned as much money. I probably wouldnā€™t have done the great jobs I did (when I was capable of working), Iā€™d have been too scared to take risks. I might not have met Mr Sssue. So I might be single or married to a pig or a f***wit.

Sue

Was diagnosed 2006, but had systems, numbness, ON, balance issues, bladder issues, sensory problems many years previous but doctors put down to trapped nerve, sleeping funny etc.

I actually remember having conversations in the late 80ā€™s about how when I got hit at school the pain was different to normal, piercing or scratchy and also had the feeling of wearing corset quite often, slurry speech, over tiredness etc.

Iā€™m now 43 with two children and have had ON for the last five days, is this a relapse?

Iā€™ve had MS for 11 years, I think. Diagnosed 6 and a half years ago. I was recently diagnosed with mild COPD.

I am so lucky. I had a really bad relapse about two months ago after a severe bout of Bronchitis. First one in three and a half years. I was doing really well before that. My immune system attacked my lungs. Caused massive inflammation.

I have been getting very depressed over the last few months. I think it is due to the inflammation or maybe due to the fact that I now have three chronic illnesses. Joy.

Anybody else get really bad depression?

Reminds me of Spartacus. No, Iā€™m Anonymous

And so is my wife!

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I am Anonymous!

Diagnosed March 2006

Symptoms going back around ten years before that. Unexplained falls, clumsiness, dropping things and double vision 2002. Investigations only began when I got dropped foot and walking problems 2004/2005

Iā€™m 62 year old female

RRMS

First symptom 1991 Optic neuritis

Diagnosed 1999

Now on 4th DMD

Annie x

Diagnosed 1973 so 46 years