This forum helps load, knowing am not alone. Woblyboys jokes also help a lot, was at work last Night when his latest arrived, caused lots of Hilarity (did not show the boss tho) Save me cake (like cherries)
Hi,
I was in limbo for 10 years, being treated for fibro even though I kept telling rhuematologist there was something else going on. He did not want to hear that as he is a doctor and obviously knows everything. Last November refused to leave his office without a nuero referral and after a standoff got one.
in May this year I was diagnoided with PPMS and nuero thinks I have it at least ten years.
ann
Well no longer in limbo I got diagnosed today with MS, not sure how I should be feeling I asked what type he said too early to tell my vep was positive for nerve damage and my LP was positive for inflammation in my LP fluid I asked for meds to help with stiffness he said it can make muscles worse I asked for LDN for my bladder he said msers swear by it but he doesn’t think it’s helpful, anyways he’s referring me for physiotherapy and OT and a MS Nurse will call me in few days and I will need a bladder scan.
my sister thinks rrms but I’ve not known or heard of anyone becoming disabled from rrms or bladder issues I really don’t know I’m on a 5 day course of steroids for now and wait to see what ms nurse says.
I am hopeful as I have a diagnoses of what I’ve had for past 17 months but onwards and hope to get better
Commisulations, Alysea. There is no particular way you ‘should’ be feeling but be gentle with yourself. I’m not quite there yet, with a rather vague diagnosis but a second opinion coming, myself. At least you know what you are dealing with and are in the right place for help and advice. Sending a {hug}
In my prayers. God bless ya.
Oh,Alsyea, commisulations. At least now you know your enemy…
Leah
Thanks all xx
this forum is a godsend really is, good luck reikiblossom keep us informed
Alysea sorry to hear your news but at least you no what your dealing with now stay strong xx