How long have u been in limbo ?

This forum helps load, knowing am not alone. Woblyboys jokes also help a lot, was at work last Night when his latest arrived, caused lots of Hilarity (did not show the boss tho) Save me cake (like cherries)

Hi,

I was in limbo for 10 years, being treated for fibro even though I kept telling rhuematologist there was something else going on. He did not want to hear that as he is a doctor and obviously knows everything. Last November refused to leave his office without a nuero referral and after a standoff got one.

in May this year I was diagnoided with PPMS and nuero thinks I have it at least ten years.

ann

Well no longer in limbo I got diagnosed today with MS, not sure how I should be feeling I asked what type he said too early to tell my vep was positive for nerve damage and my LP was positive for inflammation in my LP fluid I asked for meds to help with stiffness he said it can make muscles worse I asked for LDN for my bladder he said msers swear by it but he doesn’t think it’s helpful, anyways he’s referring me for physiotherapy and OT and a MS Nurse will call me in few days and I will need a bladder scan.

my sister thinks rrms but I’ve not known or heard of anyone becoming disabled from rrms or bladder issues I really don’t know I’m on a 5 day course of steroids for now and wait to see what ms nurse says.

I am hopeful as I have a diagnoses of what I’ve had for past 17 months but onwards and hope to get better :slight_smile:

Commisulations, Alysea. There is no particular way you ‘should’ be feeling but be gentle with yourself. I’m not quite there yet, with a rather vague diagnosis but a second opinion coming, myself. At least you know what you are dealing with and are in the right place for help and advice. Sending a {hug} :heart:

In my prayers. God bless ya.

Oh,Alsyea, commisulations. At least now you know your enemy…

Leah :slight_smile:

Thanks all xx

this forum is a godsend really is, good luck reikiblossom keep us informed :slight_smile:

Alysea sorry to hear your news but at least you no what your dealing with now stay strong xx