I am 18 years old and have been experiencing symptoms of MS for around 2 years now and I am currently being told by doctors and neurologists that they are 99% sure I have MS…this is probably lead because my older sister also has it.
I have had scans and I am currently waiting to see my neurologist again so that he can give me a definite diagnoses and we can move forward with treatment and such.
My sister lives in Germany and was diagnosed 3 years ago and had excellent treatment. I am aware that I won’t be getting quite as good treatment here In the UK as she won’t when she moves back here in a few weeks. I am just wondering how am I supposed to feel about all of this…it may seem stupid but I don’t know how I should feel.
If I cry I feel selfish, if I don’t I feel heartless and if I’m angry with people because they don’t understand why I’m in pain or tired then that just causes arguments. I’m worried and stressed about what is going to happen and what treatments I will get and how it will affect me later on, am I being silly? I just really don’t know how to feel and this is stressing me which is causing me to become tired and have symptoms more often…I just want to know is it normal to feel like this when its all new?
I would speak to my sister but I don’t want to bother her as she is stressed herself with moving back to England.
But does anyone else have similar feelings? I would appreciate any answers or advice on how to cope?
Thanks in advance