And not just MS but any disability that prevents you from taking advantage of all the “amazing walks”, “opportunities for bike rides”, “chance to get out in the country”, “do some serious gardening”, “clear out the loft/garage”, “re-discover deserted city streets” etc. etc. etc…
That’s us 24/7 for 365/365…“oh my God, just imagine”…yawn/roll eyes…
Here’s hoping for a kinder, less assuming country in 2021.
I so wish me and my hubby could going hiking in the Dales and other similar areas as we did before this came along, sometimes we’d stay in a country pub overnight, good ramble, good food and wine…gosh I miss it all.
I just miss having a life altogether and have done for last 10 years .But one thing i am grateful for, is that i managed to bring my kids up when i lost my husband before i became bad with the MS x
There are soooo many charities/conditions that people can give money too.
Cancer is tops and rightly so…British Heart Foundation is a high up one too…but what about the lesser known charities/conditions?
When I was wrongly diagnosed with HSP (hereditary spastic paraparesis) it became apparent that it was sooo little known. Even health professionals didnt know what it was.
I have a dear friend with HSP and she suffers 24/7 and like me, tries to educate anyone who asks what it is. Their research desperately needs funds.
Many people have heard of MS and when I am asked what is my condition is, I am rarely asked anything further.