How frustrating and upsetting that must have been Nina. I feel awful now for moaning about my frustrations, your experience is much worse.
Take care
Cath x
How awful for you Nina!!! And what a shame. But fully understand how with the shock of dx you or your husband didn’t think of looking into it.
My little story is not comparable in any way… but annoyed me at the time. I had been paying for some years into a ‘critical illness’ scheme through work, where we had a choice of various benefits. Would pay off a mortgage and give a percentage of final salary.
Anyway in April 05 when we renewed benefits, I decided to drop the critical illness and go for one that would give me some other benefits… can’t even remember what exactly but free dental care was one (why did I do that???)
By April the following year I had been made redundant due to being too ill to work! (although at the time I was dx with ME but apparently they pay out for that).
Oh well. On the other hand, I did pay into PPI on my mortgage, and they did pay my mortgage for the first year that I was off work.
Well there’s no use looking back…
Cath I hope you manage to get it sorted soon.
Pat x
Thanks Pat will let you know. They pull the big guns to try and wriggle out of paying but I’m not cowering. I’ll continue fighting my corner.
You do that Cath and we will be rooting for you …by the way not really worse just different and although I say it still bugs me, to be honest I really only think of it when I hear about someone having a new dx. Pat how sickeningly frustrating …you must have been kicking yourself just as we were. You mentioned PPI, hope you don’t mind me asking but have you made a claim for those policies…happy to report that we didn’t let that one escape us…got two thousand pounds it was great. Still hot here today but beautifully cool this evening…it’s wonderful. Take care, Nina x
Hi Nina, no didn’t make a claim because I did benefit from it. In fact I doubt if I can claim as they did pay my mortgage for a year. I only ever had that one PPI.
£2K… well done you!!!
Hope you’re doing well hon,
Pat x
That’s the thing isn’t it - we all take out the insurance that costs the least because these illnesses will never happen to us, other people get them. I’m glad you both got pay outs, they don’t give them without argument.
Cath x
hi i was 39 when i was diagnosed been through a lot in the lat 3 yrs depression breakdown lost my job of 13 yrs in an employment tribunal at the moment .BUT i have after i accepted it all i now have just completed my support worker training with the ms society iam also a branch volunteer co-ordinator for the fife branch , i just joined the policy forum as well so don’t beat yourself up over this there are loads of us out there and if you fancy a chat your in the right place loads of people on here will help you
Hi Mark, just want to say hi. Don’t think I’ve seen you on here before?
So glad you are getting your life back together after such a hard time. Inspiring!
Take care… and hope to see you on here again,
Pat x
Male 30 years old. Now I am married and have a beautiful 17 month old son. Life does go on. Just have to try harder.
2 Likes
the above posts are all from 2013
J x
First symptoms when I was aged 24, two weeks in hospital had lots tests and a course of steroids then sent home with no further care, didn’t get a diagnosis of ppms until about 15 years later, only got to see a neurologist and a ms nurse in the last few years, now aged 50 and symptoms have only worsened in the last few years.
Hi & welcome Adam & Andrew but please start a new thread to introduce yourselves otherwise lots of people might overlook your posts as this thread is from 3 years ago.
Sonia x
3 Likes
I was diagnosed in 1973 at 23 years old. Now in them days no MRI; no different types you either had MS or did not.
My MS nurse say’s it’s probably SPMS but I disagree with her. I have had one attack and in the last 44 years very; very slowly downhill. You must throw into the equation that I had my leg amputated in 1998 owing to catching MRSA in hospital.
George
Just catching up with everyone, I was dx 2012 with PPMS, I was 36.
Hope your all ok
Polly x
I was dx last year at age 24 with PPMS recent MRI confirmed it as well… can’t complain I’d rather it be me than someone else who would be less equipped mentally/ emotionally or physically to deal with it.
I hope ole you are all in good health other than MS but always remember to remain humble in all that you do.
1 Like
Aww that’s a sweet message Brooke, I don’t think it matters how old you are when disability strikes, you are never ready for it but life isnt over there are so many happy times and adventures to be had , ive been in a wheelchair for 5 and a half years , so far I’ve just been given an fnd label but it will do for now. When I was in the early stages of being in a wheelchair I went for cognitive behavioural therapy. I have to say it really helped me come to terms and alter my outlook. I’m much more confident about being in a wheelchair and realistic about my disability. Everyone is different but even people with severe disabilities can still have a purpose and find fulfilment in their lives . This group is excellent for advice and great for cheering you up. You might want to start a new thread as this one is quite old . Michelle and Frazer xx