Hi Tombull, you must be a fab person to want to know more about MS for your partner of 5 months. There is lots of info via pdf or hard copies of leaflets & booklets from this site Home page, under Publications.
A few days, consecutively walking around Rome City is definitely a No No for MS patients. Heat and Cold can affect MS, making symptoms magnify. Well, you’re noticing the effect Rome had and hard lessons were learned. Most of us have done it, believing we can, but the body just shuts down to no energy, even pain in hands to hold a drink. However, it sounds a nice sightseeing tour around the fab city, and for a romantic break, you’d both enjoy most of the time, if not every minute. MS is a reason to enjoy what you can, when you can. Eating a healthy, balanced diet, plenty of soft drinks and moderate exercise becomes your partner’s daily life and you may enjoy a healthier lifestyle together.
We, as sufferers of the incurable, and sometimes untreatable brain disease, often learn by trial and error. Certainly the MS Nurses do their best for their patients and put the appropriate help into place. Managing fatigue, vision, weakness, bowel, bladder, kidney issues, tremors, cognition and, sometimes out of character or unacceptable behaviours as well as mobility difficulties.
For some types of MS there are DMD drugs to help to slow down the brain & nerves damage, for some types there’s no treatments (yet…but new research looks very promising)
Some people are affected more but there’s no easy way to tell how MS will affect each individual.
You’re both young and the future is not as dark as it was for MS 10 years ago. There’s greater understanding, greater facilities and a terrific support network.
Worrying about the unknown is futile & causes anxiiety. No-one can guess if or when MS deteriorates, if it does then you’ll have options as a carer. Employ someone to help, use the many nhs facilities and, importantly, don’t lose sight of your own ambitions.
This site is a great support 24/7 too. It may not be be a rosy picture exactly, but believe me, it could be a lot worse. So get living life & making memories!