I had a sore thigh back in July for a couple of days that felt like sunburn when I touched it. Then suddenly I woke up with foot drop which by the next day was worse. I went to my GP who thought I had a stroke or spinal prolapse. I was immediately admitted for the night and all tests were fine. I was then booked in for an Mri. I had this in August and was told I had leisons on my brain but only small ones but there was me writing my life off thinking I had a brain tumour!. Anyway, after a failed lumbar puncture from hell with 5 attempts I was in limbo. I was told by QA that they would let Southampton know. After a month I heard nothing, so I went to my own GP who wrote to the hospital. I was then reffered for an appointment in January this year.
I am classed as having RRMS from my Neurologist, Dr Turner at Southampton General Hospital (he is retiring in May this year have only met him twice). I saw him in January this year and he asked about me going on to treatment but it was up to me but obviously prevention is better than a cure. He suggested Rebif due to my needle phobia. I am going to an information day at the hospital in March which may help me decide. The problem is both drugs have side effects. Any advice is great. Some of you may ask why didn’t I ask my neurologist, I said I would think about it and let him know, and left it at that. Am still waiting to meet my ms nurse have had no contact. Suddenly I have got a letter inviting me to this day whereby my bloods will be taken prior to commencing my treatment! Please don’t get me wrong I am not complaining I am just very frightened and confused. What do you guys suggest? xxx