Hiya, this is the second time I have posted on this forum. I guess the first time I posted I was a bit brief about what brought me here, so this time I thought I should add a bit more about myself. I’m a 42 year old mum of 5 and as of yet am undiagnosed. I had a spell in hospital in July last year with what was thought to be a stroke. All tests done since admission would suggest that it was not a stroke. My symptoms prior to admission began with a strange tingling numbness on the right side of my face, which progressed to complete right sided weakness with my arm and leg numb and tingling with me unable to use them. I regained use of my arm fairly quickly, but it was 2 weeks before i regained full use of my leg. I had an MRI done whilst in hospital and was told that the findings were more in line with MS than stroke and that a small lesion had been found on the right side of my brain. I have a neuro appointment for the end of next month and to be honest it can’t come quick enough.
Looking back over the years I believe I have experienced episodes which could be MS related. Approximately ten years ago I had my first experience of what i now think is nystagmus. My right eye took on a mind of its own and would not co-ordinate with my left eye. This happened on a number of occassions. When I am really tired my eyes take on a mind of thier own. My hubby has told me he has watched my eyes moving in all directions. I also have double vision when tired.
I should add I have pernicious anaemia so symptoms are not down to lack of B12. Before hospital admission I had begun to suffer from numb hands. This has progressed quite significantly. I now wake up at night due to the pain in my hands and arms and find that durning the day the pain can be very restrictive. I can only type on here for a certain amount of time before having to give up. At times it feels like being pricked with broken glass. I suffer more with pain and stiffness in my legs and sometimes pins and needles, and during the day i suffer terribly from restless legs, unable to keep them still at times!
I suffer from terrible overwhelming tiredness which didn’t help when i was at uni a few years back, trying to stay awake during lectures is hard enough at times, lol. I have also had tinnitus for the past two years and for the past few weeks have had reduced hearing in my right ear. My memory is not what it used to be, my hubby said i used to be sharp as a tack but am now on a par with him, lol! I have real difficulty remembering words mid sentence. Also recently diagnosed with low vitamin D.
I was unsure whether or not to post on here again as only got one reply the last time, lol but i guess one is better than none. It would be nice to hear others thoughts as i am really interested to know if anyone else has experienced similar symtoms (it just took me 2 minutes to find the word symptom, lol).
I also kinda wonder if I don’t have MS then why am I feeling so awful, ie do my symtoms tie in with any other neurological conditions?
Believe it or not I am usually a glass half full type person, lol. Think i’m just a wee bit down at the moment, so my heart goes out to all on here who are feeling the same. Big hugs from me to you all! xx