Heard off my MS nurse

Everyday living
1

So my MS nurse made contact with me this morning. Arranged to meet me in a couple of weeks to discuss everything at length, treatments and any questions I had etc…

I then get a call of this afternoon and she said after speaking to my Neuro, after he had meetings to discuss my MRI and symptoms with other experts, they are of the opinion I will need the Lemtrada DMD. This all depends on my LP and other blood tests which will be done in the coming month.

What are others experiences of Lemtrada? Am I lucky to be given this DMD? I have read nothing but good things about it for controlling MS minus the potential side effects and some people not fitting the criteria.

I don’t know if I should be relieved or what, this has been the most bizzare few weeks of my life and it all seems to be whizzing along now which is what I wanted, but still all this to take in in the space of a few hours and it doesn’t seem real.

2

Hi Lemtrada is a good DMD as far as I know, i’m on Tecfidera. Reading your previous comments on other threads you have had leg weakness so from what I understand Lemtrada is appropriate for your symptoms.

I hope you can feel a bit more relaxed now.

xx

1 Like
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They started me on Tecfidera but always said Lemtrada will be the next one up should I need it. I wish you all the best. Read up on it on this site if you need or want to.

Trev

4

Yes you are very lucky.