Apologies for the delayed response.
I was treated as an in-patient at Kings College so kept in for 5 nights. That is their standard protocol - other hospitals treat as out-patients where possible. For the first two nights I was in a ward of four. For the last three nights I was in a private room (as they needed to turn the ward room into a men’s ward due to a number of patients coming in over night). Both were fine.
Prior to being admitted you are tested for lots of things to make sure you are healthy (e.g. Lots of blood tests, ecg, chest X-ray, smear, urine tests). This is about 6 weeks ahead of treatment.
On admittance they then re- test bloods/urine/ecg to make sure you are still well and a cannula is inserted. This was fine - mine was in my wrist.
Each morning I was woken early for blood tests. I made a point of getting up, showered and dressed before breakfast and walking the ward. Each day you are given tablet form anti-vitals and iv antihistamine and anti- nausea meds. On the first three days you are also given over steroids. This takes about 20 mins (some hospitals use steroids on all five days - just different protocols). Then you are given the Lem very slowly over about 4 hours. Your heart/ temperature/ blood pressure is tested every 30 minutes during infusion and for two hours following. My heart rate and blood pressure skipped about but I felt absolutely fine. Maybe a little dozy. I had a mild head ache on one day and a rash on the third/ fourth days. It looked spectacular but wasn’t too itchy. So no big dramas. Main issue was the boredom - Netflix is highly recommended (I watched all of breaking bad). I managed to sleep well each night despite the steroids and made sure I drank lots of water throughout which I am sure helped.
I felt pretty knackered at the end - but on my first day at home I asked my boyfriend to take me to the local country park for a walk. We didn’t go more than about 4 miles, but I’m sure the fresh air did me the world of good after being cooped up. Next day I felt fine. I took two weeks off of work post treatment to avoid the London commute whilst my immune system was at its weakest - but was out walking each day and doing kettle bells at home. I felt so well the challenge was to take it easy and give me time to recover. I was out running within the two weeks though.
So I had a really easy run of it - and am hoping for the same this time round (fingers crossed/ touch wood). It’s only one persons experiance, but from what I’ve seen on the fb group it is certainly not a unique one.
Very happy to answer any specific questions.