i have been caring for my wife who has neurological issues for 4 years . She has had several MRI’s ( years ago) and evoked potentials- neither gave a clear diagnosis . She has mobility problems ( walker in the house, wheelchair outside) is incontinent with retention and has spasms . She seems to have been abandoned by the neurologist who just said he didnt know what it was but that it was organic not functional and we would have to wait until something else happened to get a diagnosis so we wait. years. She is in bed until 4 everyday because she struggles to sit for any length of time. She is 53.
GP won’t do anything because she is " under the neurologist " but hasn’t even seen him in 2 years. The bladder issues go untreated because the GP says it’s neurological.
I feel like I am letting her down, but I don’t know what to do.
She has given up she says this is just her life now . Lying in bed. I have worked from home for the last two years to take care of her.
If anyone has any suggestions I would be very grateful.