The recent article on the MS Society homepage http://www.mssociety.org.uk/ms-news/2015/08/us-gilenya-patients-develop-pml describes two new cases of Gilenya users in the US being diagnosed with PML. I was also told by my MS Specialist Nurse that there has been one case confirmed in the UK. I appreciate that the condition is very rare and these cases represent a tiny proportion of Gilenya users in the UK, however, having researched PML and scared the living bejeezus out of myself, I’m seriously thinking of coming off the drug entirely.
Just wonder if anyone else on Gilenya shares these concerns and if you’ve come off Gilenya?
Any comments/opinions gratefully received.