This is my first post, but have been reading the forum for a while and have found it very helpful to read other people's stories.
I was diagnosed with Transverse Myelitis (C2-C3) last March following sudden onset of sensory symptoms on my left side and loss of function on the right hand side. Despite severe neuropathic pain, the distress of suddenly losing use of arm and leg, and randomly falling over, I never felt unwell. It was quite surreal.
I have since had another episode that has been rumbling on since October. MRI shows a new lesion in the brain, with the neuro saying it's now likely MS although to show only 1 new lesion is unusual. He said the location of the lesion (left front lobe) does not account for the symptoms but expects another lesion on the top of the brain to show on next MRI.
I've just finished my third course of steroids within a year and still not much improvement in left side weakness, tremors, spasms etc. that have happened with this second episode Thing is, this time around I feel really quite unwell - woozy, dizzy and quite disorientated, but balance is ok and I am ok on the various neurological tests . Neuro said this is also very common, but it is the most debilitating aspect of this condition for me at the moment and is impacting my work/life the most. Is this normal? Sometimes I wonder if anything else is going on. I am on Gabapentin and Baclofen - don't think these are the culprits though as was on far greater doses during the initial episode last year.
Any thoughts are welcome!