I just wanted to thank everyone that posts on here - the support and advice here is truly inspirational.
My recent Brain MRI showed lots of areas of inflammation which the neurologist said may be causing my symptoms although my spinal MRI was clear. I am down for a lumbar puncture in the new year and presume there will be some confirmation of diagnosis after that point.
For the last few weeks I have been rather unwell with a really bad flare-up of symptoms (symptoms I have been dealing with daily for many, many years!) and the neurologist prescribed a 5 day oral course of steroids to help. My lovely specialist did actually say this would be MS and that is why we were going this route.
So… I am sitting here, when I should be at work(!) battling the tail end of the effects of the steroids. I have been reading the posts on the forum and am amazed and in awe of you all - planning, researching and adapting! So why don’t I feel anything about this?
In my head - I am the same person with the same health issues as before- after so many years like this, a name for my condition really does not amount to much. I have been living this way for years and do not see how or why anything will change now. The only thing I can think of is " I knew I wasn’t a hypochondriac" and “Basilar Migranes HA”!! Am I being naive? Believe it or not, I am more worried about not being worried than I am about the lumbar puncture, and the possibility I’m going to implode or something when everything does finally catch up with me.
Sorry for the ramble and not sure what anyone can say to it, but it was really good to admit this in writing! It’s the first time I have “spoken” to anyone other than the specialist about it and the first time I have used the letters MS in regards to myself.