I’ve been reading the very helpful discussions on the forum for a few months now, and have finally decided to say hello and reach out to the community. My husband was diagnosed with RRMS in mid-April after tingling and numbness in his left side prompted doctors to do an MRI. The diagnosis came as a complete shock, to say the least. My husband is a silent type, so much of my efforts initially went towards trying to get him to speak about it and maybe see a therapist for a few sessions (the latter he has yet to do). He finally started Tecfidera about two months ago, and now that he has started therapy we are both definitely more calm about the whole thing, but some days it feels like the calm before the storm.
I understand that the uncertainty of what MS may bring is, at the beginning especially, a tough thing to overcome mentally. My husband’s approach until now has been very much about taking his meds, seeing his doctor when he needs to, but learning as little about MS as possible. I on the other hand have been reading up about MS symptoms,the medicines offered, Tecfidera side-effects, etc. in order to help make sense of some of the symptoms and things I can see my husband going through. I refer to him the things I read which are relevant for him, and that he is happy to hear about, but still he prefers to not do his own research. He is happy with this balance we have found, but I would like to hear from others who have gone though this initial stage, what they think was useful in this very early stage of post-diagnosis. How important is seeing a therapist, even for the strong silent types, for future mental health down the road? Do you want to be talking about your feelings all the time, or is the best way to really get on with your life, and not think about it?
I know we are all different so people react differently to different things (just as each MS experience is a unique one), but any advice on what was helpful for you in getting through this initial period and ‘moving on’ would be much appreciated.
i also wanted to say what a lovely community of people here on this forum and reading you is always very encouraging.