Not sure what to do…as you all know the future is so uncertain with MS and no one can say what will happen, which makes it very difficult to plan or make decisions.
At the moment I am experiencing mild symptoms, nothing that interferes with daily life (thank God). But of course there is no way to know how long that will last.
I had always planned to leave my job when my eldest child starts school as I work quite a distance from home and she would finish school early so if I was at work, I’d have to get an after school service to collect her and mind her til I got home etc. It’s not how I envisaged things, and wanted to be at home for my daughters - I’m only back at work now because financially it would leave things very tight.
There is a slight chance of voluntary redundancy which I’ve applied for - obviously if I got that I’d have some money saved for the future.
But if I don’t get the VR, i would plan to resign before next September when my eldest starts school. Some people are saying that it would be a bad idea to leave a secure job in case in the future I have high medical costs which private health insurance would not fully cover.
On the other hand, i am currently well, and you only get one life. If I stay in work because if my health deteriorated I would need the money, sick leave etc, I could find that I am well and able to work into my 50s or beyond (please God) and then I’d have missed the chance to be at home with my children when they are small and growing up.
It’s so frustrating that I can’t possibly know how this thing is going to go, and it means I really don’t know what to do.