Frustration in limbo

New diagnosis and before diagnosis
1

Hi all,

Im posting as i feel so stuck and helpless at the moment. I am waiting for my first neuro appointment after a bunch of opthalmology appointments. (This is going to sound whiny i know) people just expect me to do my job and live my life with no difference??

I am trying to see occupational health so i can work from home more when its hot - i have uhthoffs. But because i dont have a definitive diagnosis they’re really dragging their feet. I just feel so frustrated.

2

Hi there,
The opthalmic optician first detected my multiple sclerosis, when I had complete vision loss in right-eye, due to optic neuritis.

He then referred me to a neurologist for further investigation, in a letter, then NHS neurology took it from there 24 years ago, if can I remember.
Good luck,
JP