Hi guys… I joined the forum a week or so ago for some info and support. So far so good!! But, I am feeling really frustrated at the minute.
This time last month I was in Australia, in hospital. I was treated with a course of steroids and my symptons improved gradually. However, thats when the bombshell of MS was dropped on me and I was told it was probable. My discharge summary states MS on it and reading through my MRI notes I have multiple white matter lesions and one active lesion suggestive of MS. The mention of MS was a huge shock to me, especially being away from home so I took the decision to fly back for some support from my family. Yesterday I had an appointment with the neuro and he told me that I wasn’t high risk and he was really reluctant to suggest MS. I can’t however, stop thinking about MS as the doctors in oz told me that it was probable so this huge bombshell was dropped on me now I get home and I’m told not to think of MS!?. The neuro yday said as my symptons have improved so well that it is entirely up to myself whether or not to have another MRI in 3 months, but he was happy to let me go back to Australia etc. I’m still waiting on CSF oligoclonal bands results- I don’t know if they will even prove anything!? and I am EBV positive which doesnt seem to have any signifance to the neuros either!?
Sorry to ramble on guys, your prob all half asleep by now! I just feel in total limbo right now as If I would of seen this neuro in Australia I more than likely would still be there. I should probably just accept what the neuro told me yday and be happy that I recovered so well from that first ‘attack’ but I’m just so angry as I’ve been told the worse by the docs in hospital and then another thing by the doctors here!