I have been lurking for a long time and finally signed up. Then, I did one post (I think it was 1 post, I have a brain like swiss cheese!) I got so incensed about another limbolander’s bad treatment by the system that I couldn’t believe it. I was trying to be supportive but, frankly, I looked like a complete t*t and it was embarrassing.
So, I decided to go back to lurking lol
Limbo can be all consuming. People in limbo (me included) can start thinking they are the most important thing and that their struggles to get answers and diagnosed is the single most important thing.
To be brutally honest, limboland struggles are not the most important thing, ask those who have been struggling for a firm diagnosis for over a decade, as some on this forum have been.
Living the best life is most important but no diagnosis and no answers from neurologists causes worry so we need and ask for answers because literally hundreds of us seem to be in the same limbo situation. In our search for answers we discover support networks, like this forum.
There are always people who seem more willing to do the work and the research to help with questions and believe me, it is hard work full stop much less with:
“MS/probably MS/I think I have MS/don’t know what I have but I def have neurological problems that interfere severely with my life…”
Those who demonstrate they are very willing to try and help are NOT giving answers, they are providing information.
Ultimately if you want answers it is your responsibility to gather information and then try to make your own informed decision.
Best regards to all.