Just wondered if there’s any good advice please. My position is I am not formally diagnosed but over the past 3 years have had 3 abnormal MRIs (with no change), and I think I meet all the criteria for a diagnosis. The neurologist however, says that because I have only had evidence of one attack (brain and spine lesions) that although I have probable progressive MS there is nothing to gain from a formal diagnosis now so am being monitored every 6 months.
Although I have right side weakness and muscle tightness etc, my main problem is footrop and my ankle doesn’t work for which the physio gave me a brace (to my knee), although this helps it is uncomfortable. I have heard about the silicone AFO but it is very expensive and I did briefly try the (like the tens , I have temporarily forgotton the name of it - another sympton heh!). I have noticed now that my foot is turning out and I am walking with my weight on the right of my foot and I wondered if a Podiatrist would help and whether you can get orthotics on the National Health? Does anyone out there have a similar problem and what is the solution? I would try and get the SAFO but am worried that it cost a lot and then if it doesn’t work, it’s money wasted.
Thanks for listening and have a good evening!