Quick background - I have been diagnosed with MS for 21 yrs…I have been lucky, but last year was placed on Plegridy as more active lesions on my MRI scan and and approaching age 50. I have managed well up till now, usual problems, fatigue, odd sensations etc and a few heavy relapses. Anyway, at my last Neurology appointment my consultant said he wants me to go onto Fingolimod, daily tablet rather than an injection once every two weeks. I have been trying in vein to speak to others who have been using this drug and even went to my local MS therapy centre yesterday to see if I could speak to anyone but alas, no one there had even heard of it!!! I did the You tube clips and listened to many reports (USA version is Gelenya) but I still feel I want to speak with someone or a few people who have tried or are still taking this drug. The side effects on the internet suggest many things, as it did with Plegridy but I am feeling a bit lost as to what to do. My current DMT suits me as I feel rough for 1 day our of two weeks and it allows me to continue with my job. I fear if I start taking a daily DMT I will feel rough everyday and am not sure running the risk of that against the quality of my life now is worth it.
I would therefore really appreciate some words from anyone who is taking Fingolimod, the good and the bad…