Hi, everybody, This is my first time post on this forum, I used newly diagnosed in 2011 I am a 43 year old woman 
. I have just started Fingolimod treatment I’m only two weeks in but I can’t sleep, I’m getting about three hours proper sleep a night! My difficulty is that I don’t know if this is a side affect or because I have started taking prosaic and weaned off Gabapentin. I’m still working as a full time teacher so this week has been a nightmare I’m exhausted. Is this normal? Please reply feeling desperate Susan x
Hiya Susan,
Yeah same happened to me, I get up for work 5am work fulltime and go to bed at 12am or 1am and repeat.
I’ve not had the exhaustion thing yet which is funny as before I use to have chronic fatigue and take pills for it.
Now its gone the other way. I’ve been on Fingolimod/Gilenya for 7 weeks and sleeping still not gone back to normal.
Some of my local MS friends taking it are now suffering fatigue with it, Think I rather have the energy than fatigue again.
If it’s a real problem I guess you could ask your GP for some Zopiclone to nudge you off to sleep.
Thanks glad to know it’s not just me as I couldn’t find it in the patient info!
If you have other questions there is a private facebook group