Hey folks, just looking abit of feedback, I got my options offered to me yestoday and confirmation that I have RRMS and waiting to hear from the MS nurse
My options:
Betainterferons
Glatiramer acetate (copaxone)
Dimethyl numerate
Teriflunomide
As I say any feedback if anyone has been on any of the above
Different people have different priorities but for me getting on the most effective disease modifying treatment available to me has always been number one.
You might want to have a look at the info cards on this link. I know it looks overwhelming, but you only need to look at the ones that you’ve been offered. I like the way that these info cards make it easier to compare like for like.
As I say, for me the efficacy is the only thing I’ve ever been interested in! But it does also give you an idea about other things like side effects. But please try not to worry too much about the side-effects of the drugs. The effects of poorly-managed MS can be much much worse, and that’s what you’re trying to avoid.
Hi @Ginger_Matt I’ve been on Avonex (one of the interferons ) for around 19 year. In that time Ive have had just one new lesion. It’s a weekly injection using an auto injection pen. The only side I experience is felling a bit rubbish fo 1-2 days after the injection and during those days I just rest and take Paracetamol. Overall, Avonex seems to have been good for me. At age 72 I’m still walking although not very far and usually with some sort of aid
As @alison100 says the best thing and growing view is that it’s best to use the most effective treatment from the start and I think that all the ones on your list are classed as moderately effective. Might be worth asking your MS Nurse about using a more effective drug?
Thanks for the advice! My head feels like it’s gonna explode with all the reading!!! But out of all the options on the letter dimethyl fumarate (tecfidera) seem to be the most prominent out of the option, I am still to receive a call from the MS nurse etc! Hopefully it’s soon! It’s all very overwhelming