The last couple of weeks I have become increasingly worried about things. My MS has caused Nystagmus which I thought was only in one eye but when I saw eye Specialist a couple of weeks ago she said there are signs of it in other eye. I am now worrying about my sight deteriorating and not being able to work or drive.
i currently work full time in an office and my husband doesn’t drive. I guess I am worrying about the what ifs, how will we get by and manage on no one driving. Although he has been learning he is fine with me co driving but suffered panic attacks when went with instructor, so I don’t think it will ever happen.
We don’t live on mainland UK but in Channel Islands so different benefits and access to specialists/meds.
Just seem to be focusing on negatives instead of positives at the moment. Even thought about if unable to work we would need to sell house and use capital to rent privately etc. I could cry a lot of the time.
I was dx 4 years ago in April and still haven’t told the children as I was waiting until they were older (they are 10 nearly 11 and 7). Im not sure if anything I’m doing is right anymore. I have always tried to be positive about my dx but now I’m scared and worrying about ‘what ifs’.
The specialists have not taken away my license and when I saw her a couple of weeks ago she said she would see me in a year, surely if that bad she would be seeing me earlier and have taken me off roads? No mention of meds/op. I phoned last week as experiencing eye pain and seeing a locum eye specialist Monday.
I guess I’m just scared.