Feeling overwhelmed

Today I was diagnosed with Secondary progressive MS. To say I was shocked would be an understatement. I was expecting at the very most to be diagnosed with benign MS. This was what my neurologist mentioned back in February.

SPMS is not something I even considered. I’m feeling a little overwhelmed and to be honest petrified of what the future holds for me.

I know it’s not the end of the world but deep down I’m scared.

Sorry about you dx. Although I’m not spms I’ve just been dx with highly active rrms. Not as bad as yours, but I can share that feeling of being scared and a bit overwhelmed. Can’t really give you any advice as I’m new to this too, even though I’d been expecting a dx since the end of may and knew myself i possibly has ms since last oct. I am hoping the dmds will help, though those hold other worries. Lots of hugs, your never alone with this forum.

hi hitch

basically spms is much the same as rrms, except you won’t have the delight (?) of injecting yourself.

symptom management will be your focus now.

i’d suggest that you find your nearest ms therapy centre and maybe try HBOT (hyper barric oxygen treatment)

exercise is very important, so ask your physio for suggestions.

eat well, sleep well and maybe try LDN (low dose naltrexone) not available on the NHS but it isnt expensive.

if you google it, you’ll find their website.

good luck

carole xx