Fed up sometimes

I’m feeling fed up with things and don’t feel like anyone understands what I’m going through. Frustrated with life at the moment and fed up of feeling exhausted and having no energy! I seem to have to hear my friends problems all the time and nobody asks how I am and what’s going on with me. I feel so down and fed up some days and other days I’m absolutely fine and I don’t think it’s depression I think it’s just this stupid ms playing havoc with my emotions! Just needs to rant and feel like there’s no body to talk to or nobody to listen sometimes. Thanks

we all listen on here.

i take my anti depressant in the evening and i really need it now.

i find the fatigue the worst symptom.

painful legs - take a neuropathic pain killer.

but the fatigue really lays me low.

take care anon

carole xxx

We really do listen on here, I have had amazing advice that has really helped when I was feeling very low.

I think we don’t realise when the MS is making us feel low, although constantly feeling exhausted really doesn’t help lighten our mood. I was perscribed anti-depressants but only ever took 2 pills…I just really didn’t want to be on more drugs.

It is very difficult for others to understand just how exhausted we feel and how difficult it is for us to get through the day, I’m sure my colleagues think I’m putting it on just to get out of doing things at work, and when people ask they just say…oh she is tired today!

Hope you are feeling better,

Emma

Hi Anon, rant away lovely, there will be very few people who use this forum who do not fully understand everything you are saying, I have a few very dear friends who ask me how I am and then will tell me to take care and disappear for days out of my life, I dont see many people and thats fine as they have their own lives but they stop txtn which is my chosen way to keep in touch, nothing. I live alone and on my dark days I often think how long it would be if I died before anyone would notice. Eeeh how sad I could become if I didnt kick my own butt. Me aside I do empathise with you lovely, as I too at times feel that I give so much time in trying to support those I love when they are going through rough times but they feel it appropriate to leave me to ride through my bad days without stabilisers. For me even just a “hello” if you need me im here, would be sufficient, even though I probably would not need them, the knowledge they are thinking about me would be comforting. Im with Emma on the difficulties people have understanding this illness and it covers the spectrum from friends, family, acquaintances and work colleagues. It is very difficult all around lovely but this forum can provide a little empathy and support so needed at times. Big hugs Joy xx

Hi Anon, You are not alone, try and remember that. I know myself that just knowing that people understand what are going through is a comfort especially with the fatigue, it’s hard when people can’t see what you’re struggling with like a broken leg and the fatigue with MS is not just tiredness, trying to explain it to people is difficult. Also try to think positive, I have been doing a mindfulness course and found it brilliant. We all take so much for granted, even with MS. Also remember that what you are feeling on the low days is temporary and it will pass, I keep telling myself that when I’m feeling ill/low and it does help. Take care, Kate xx

Thanks everyone for your kind replies and for taking the time to reply. Just having a hard time at the moment and just feeling like things are getting too difficult and don’t feel like I have anyone to talk to that really understands