Thanks all. Your answers are much as I expected to be honest. I mean, it would be great to take a power nap as required - but that just doesnt go down well in the office!!! I know what I could be doing to manage my fatigue - but putting it into practice is the hard part. I waste so much of my annual leave just taking a day off to sleep!
Fatigue is my biggest issue right now, I have been diagnosed 6 years and I was on Tysabri. They say Tysabri doesnt help fatigue but the whole time I was on that - I didnt feel like this (been on Gilenya about 8/9 months now).
Sue - your points are all great, at the moment I am barely managing a work and home life. I do have a husband…he also has MS. But, he is medically retired now so he does manage quite well, I am only 32 so that is a place I dont want to be anywhere near just yet. We dont have kids, we would like them but the way things are right now I dont think it would be a wise decision. I come home from work absolutely wiped out - but hubby and I are very good at “ignoring” the house work if we arent up to it! If only the sun would stop shining through the windows and highlighting all the dust!
I may see when the date is, and decide from then as to if I attend the course or not. Wendels - I think I agree that the nicest part will be meeting other people and I assume it wont be just MSers, but people from all walks of life suffering with fatigue. I like many others get really wiped out by the heat as well so I think that is probably making things worse.
Thanks again for responding